Monday, 24 December 2012
Happy Christmas
It has been up becuase Christmas is nearly here, and it's one of my favourite times of the year with the kids, family and of course friends. Last year was pretty rubbish if I am honest as it was during the "tough" part of my chemo. This year apart from the cough, all should be ok, so I plan to make the most of it.
Yesterday I took Freja driving again, and its remarkable the amount of progress she has made in one week, I was very confortable with her driving, and at this rate she will pass in no time, no pressur ethere then Sis!!!
Anyway, I hope you all have a great Christmas and New Year whatever you are doing and whoever you are with, and that the New Year brings you everything you dream off.
Wednesday, 12 December 2012
12.12.12
Monday saw me have round 2 of my chemo, so that's 30% of the way there. They cannot tell if it's working yet until I have my next CT scan at the end of round 3, so towards the end of January, but they are not concerned about anything at the moment. I still have very few side affects, just tiredness, and I think my hair may be starting to go, as I have lost a few strands the last couple of days. At least the forecast is to get warmer though.
Over the last coupe of weeks, I have been busy getting on and enjoying things, Christmas and birthday shopping, going to my allotment and enjoying the outside, and watching Max and Leisha playing football. Leisha has a cup semi final this weekend and I hope to be over the tiredness enough to go, ad they have beaten the top teams to A&E it this far so have a grate chance to make the final.we have also had parents evening at school for both Freja and Anya, and I am so proud of them doing so well, given everything they have to deal with.
Looking forward to Christmas and New Year, this should be a much happier for me, not least as I will be at the end of this round of chemo and should be feeling quite good. Last year was very tough. I plan to cook Christmas dinner as usual, last year was the first time in early 20 years I didn't cook, and I found it very tough, just sitting and being quiet. This year we are having turkey from Holborn's in Nutfield, and and old cut of beef called an H or Aitch cut. Grandad used to say it was the best roasting joint so we are giving it a go. Of course we do our own ham as usual, so I will be busy from Sunday onwards preparing the meal. If anyone is around and wants to call in, please do. My next chemo s scheduled for New Years Eve but this has been moved to 2nd January, so we can celebrate New Year too.
Every few days Sarah posts me a little message on facebook, and one last week really captured our feelings over this whole episode in our lives. It came with a cute picture I can't add here, but the quote is "Don't count the days, make the days count".
Probably wont update again until next week, but be safe everyone
Tuesday, 27 November 2012
round 2 part 1 update
The treatment itself seems to be easier on me, I really have only had soem tiredness hit me, Friday afternoon to be exact. It really abated yesterday, as we went down to the town and did some shopping, it was good to get some outside air, and for once the sun came out, but only for 2 minutes. Apart from that, its actually been ok, although I know it may get worse as the number of rounds progresses and the cumulative affects kick in, but fingers crossed that will be fine too.
So I say we have been busy and I mean the royal we, as I have actually not done much at all. Saturday saw Ross and Norman turn up bright and early, and 4 hours later Freja and Leisha had a new wardrobe built and installed. Surprisignly, as Ross built half of it, it's still standing, so Norman did a good job "advising" him. Sunday saw the girls get the remainder of their clothes from storage and put away.
Saturday also saw Sarah go to see Robbie Williams with good friend Michelle. Michelle thank you so much for letting Sarah join you, she had a really great time. Paul took them up to the O2 and Freja went too, to have dinner and a trip to the cinema with Paul, who is her godfather. However she was a little put out that Paul went to so many places to get a decent coffee, in a proper cup!
Today is Anya's 12th birthday so we were all up bright and early, well early anyway, and she was very happy with her gifts and cards. Tonight we have the grandparents coming round so the party will continue for her.
So what am I going to do wth the time I have in between treatments when i am feeling good. Well the plan on my behalf is quite simple. I will be trying to sort the allotment out, doing the Christmas cards, and maybe shopping/wrapping, some cooking, maybe some shooting, I maybe even do a little work. What Sarah has planned for me however remains to be seen ...
Tuesday, 20 November 2012
Here I go again ...
The diagnoses that I needed to get back on chemo was pretty depressing for a day or two, as I just did not see it coming, Then, I was back to my old self, lets face it, fight it, and get going. That's why I have been so busy!
Firstly, I have had quite a few tests to make sure I am ok for the chemo, which I seem to have passed ok. I even had an MRI on my head as I have had some vision issues since the charity ride, but they are slowly getting better. It was a relief to get a call from him personally to say all was ok, before he even called my Oncologist. Sarah wanted to know if I had a brain, seeing as it is not working too well. He confirmed I did have a brian, but was unsure if it was working or not!
In the mean time I have been decorating the girls bedroom, which we finally finished on Saturday. It looks very grown up, and they have made good choices, all I have done is do the work and pay for it. We still ahve to build the new wardrobe, which we hope to do Saturday depending on how I feel, and what offers of help we get - nudge nudge!!
I also went to a heavy metal concert on Thursday at the Hammersmith Apollo. The group, Steel Panther, were fantastic, but don't look them up if you are easilly offended as they are very over the top. It was agreat gig, made the more funny as we had a pint beforehand, and as you know I have pretty much been tea total. Well one pint of Fosters, and believe it or not I was staggering.I am surely a cheap date now LOL.
Saturday saw us host a small party to celebrate my one year since diagnoses, and it was a scream. We had a live band, Fret 14, who were great. The band, all school friends of Freja, are only 16, are very gifted and very tight. They also write their pown material so are not just a covers band. Yuo can find out more about them on the following links:
https://www.facebook.com/Fret14
http://www.caterham-independent.co.uk/latest-news/1502-fret-14-wins-battle-of-the-bands-
http://www.muzu.tv/liveandunsigned/fret-14-live-unsigned-basildon-regional-final-music-video/1329327/
Sunday saw Anya's confirmation, and as you know I just love going to Church, It was quite a long service starting at 6.30pm, so finished pretty late for those with little ones. Either way Anya looked beautiful and she made me proud as she has chosen this herself. We had to go tot eh church hall afterwards for some tea with the Bishop, which was interesting. I was somewhat surprised he made references to Jimmy Saville in his sermon however, it struck me as inappropriate considering the occaision.
So yesterday I finally got to the hospital in Guildford for my first round of chemo. We realised that I was wearing very similat clothes to my first treatment last time, so hopefully thats a lucky sign. The chemo this time is much easier, only 3 hours long but I do have it in tablet form to take for the next two days as well, but thats fine. Itr means we miss the rush hour traffic chaos of the M"5 both ways, which was not the case before. I also have no tablets to take other than the 3 days of chemo, and some anit sickness tablets if I need them as needed. I was pretty tired last night, but I expected that as you can see I had been pretty busy. Woke up this morning at usual time and started on the tablets staright away. Not because I have to take them at a set time, its because I cant eat for 2 hours afterwards and I wanted my brekkie. So here I go again, ready to face what comes, and in the words of Whitesnake, and Here I go Again ...
No, I don't know where I'm going
But, I sure know where I've been
Hanging on the promises
In songs of yesterday
An' I've made up my mind,
I ain't wasting no more time
Here I go again
Here I go again
Tho' I keep searching for an answer,
I never seem to find what I'm looking for
Oh Lord, I pray
You give me strength to carry on,
'Cos I know what it means
To walk along the lonely street of dreams
An' here I go again on my own (with Sarah, the kids family and friends)Goin' down the only road I've ever known,
Like a drifter I was born to walk alone
An' I've made up my mind
I ain't wasting no more time
Tuesday, 6 November 2012
It all starts again
I then had my scan, at which I said I did not anticpate any issues. Well I won't be that cocksure again, as the C is back in several small areas, and that meant we wnet on holiday, taking Mum, pretty downcast. But the oliday came at exactly the right time, as we all able to spend some really good quality time together, all leaning on each other, and able to start looking forward again.. thank you Patty, Graham and Simon, we had a really good time.
Yesterday I met with Julian, my oncologist, and he confirmed that i will need a new round of chemo. Its pretty similar to before, 6 rounds of treatment, 3 weeks apart. I start a week Monday, on the 19th November, so the blog will become more active again I suspect as I keep you all informed.
Looking forward though, the treatment dates work pretty well for Christmas, so hopefully I will be better company than last year, and it should once again leave summer clear to enjoy.
Wednesday, 17 October 2012
and I'm back!!
Back from my ride and now back at work too. the ride went very well, you can read more and find out how much I raised over at www.wrongwayround.org.uk.
What to tell you all, well next week see's my next 3 monthly scan, followed by a meeting with the oncologist about 10 days later, I fell really good so do not expect any bad news on that front. Inbetween the scan and the meeting we are off to Cornwall on holiday for a week, taking Mum along too. We are looking forward to a relaxing time, and trying out Rick Stein's fish and chips in Padstow.
Sarah has me decorating the kids bedrooms, all before Christmas, so if anyone wants to lend a hand with the painting, let me know!!
Will update every week or so as we move forward
Bye for now
Sunday, 16 September 2012
I'm off
Please keep up to date with my progress and feel free to post comments, they will help keep my backside from getting to sore!!
Wednesday, 5 September 2012
The roller coaster continues ...
The trip home was great untill reaching Calais, where the ferries were in big trouble due to a broken down ferry. We finally left some 5 hours late, which meant we got home at 4.30am instead of before midnight.
The weekend then went downhill when we had a call to say my Grandad had passed away. He was in hospital, but had only been in a couple of weeks. He was 93 and still lived in his own house and was very independant. Sleep peacefully Grandad.
This means I have to re-schedule the latter part of my ride, as the funeral is 24 September. Therefore I am flying back from Scotland and then going back up to re-start the ride. Thanks to JoeFish and C90Club.co.uk for looking after the bike for me, really appreciate it
Now for those of you who have not yet shared my ride with all your friends or sponsored me, please do. The website is www.wrongwayround.org.uk
Tuesday, 14 August 2012
Its all over, the Olympics that is
Click on the picture to enlarge it!
Now don't forget to share my website about the ride with your family and friends, and maybe even sponsor me - www.wrongwayround.org.uk
Wednesday, 8 August 2012
We're all going on a summer holiday
fun and laughter on our summer holiday
no more worries for me and you, and you, and you etc
Can you tell I am getting in the holiday spirit? When I was first diagnosed I set myself a number of targets to acheive. Seeing my holiday next week and the chairty ride in a few weeks time, means I am almost at the end of that original list. So while in France n holiday, I need to get my thinking cap on. I knwo I want to help Freja learn to drive in December, and a visit to the Tour de France next year on a new motorbike are certainly on the list. but apart from that, erm, that's it for now. If you have any sugestions, let me know.
As to the charity ride, well yesterday I planned a full days riding, with the bike fully loaded, including all the accessories and camping equipment. I got all loaded up, then noticied I had a flat tyre. Picture below is of the bike ready to go, except for the flat!!
Seeing as I will be on holiday in France very soon, I may not post up for a couple of weeks, but be sure to keep checking, just in case! Before I go, big shout to Team GB at the Olympics, well done all!
Tuesday, 31 July 2012
Rolling, rolling, rolling
I have had a great few days, the best of which was yesterday, when I had my first 3 month check up with my oncologist. The great news is that things are continuing to improve, and that I do not need to see him for another 3 months. So now I can concentrate on holidays, enjoing myself, and ohh the return to work!
Saturday and Sunday found me working at the 2012 Olympics, for the cycling road races. I was in Bushy Park for the morning, and just after Hampton Court for the afternoon. I had a great time, and the crowds, which were huge, were very friendly. Tomorrow I am also working at the cycling again, this time trials. I dont know where i will be yet, as they haven't told me, but wherever it is, I will see lots of action as this is an individual sport, with the riders starting 90 seconds apart.
The other benefit of the 3 monthly review is that I am now all set and confirmed for my charity ride for St Catherine's Hospice, so if you have not yet sponsored me, you better now do it.
Tuesday, 24 July 2012
Olympic opening Cermony rehersals
Monday, 23 July 2012
It's not unusual ...
Friday, 20 July 2012
Latest test results
Tuesday, 17 July 2012
Another week of firsts
Friday, 6 July 2012
That was the week that was
Monday, 2 July 2012
Work
Tuesday is a big day and milestone for me, I finally go back to work. Its only for a couple of hours, for a couple of days a week to start with, as we all, me, the firm & the occupational therapist, want to make sure its an easy and gentle start back. Every couple of weeks, the hours will increase. Good job the British summer is so hot, so I can enjoy the time I am not working!!
I should say at this point a very big thank you to work, both Towers Watson as a firm, and all the people there. They have been very supportive to me over the recent months, and I realise that I have not really said thank you. The firm have not put any pressure on me to come back, in fact they are holding me back a bit, but I know that's actually for the best. And my work colleagues are really the best, I am looking forward to seeing you all again very soon.
I'll end today's short update by saying well done to Spain for winning the Euro 2012 Championships, and in the best match of the tournament!
Dont forget to sponsor my ride at www.wrongwayround.org.uk
Wednesday, 27 June 2012
My job is a crossing point marshall at both the Mall (road races) and Hampton Court (time trials). These happen to also be the start and finish area's, so I am very lucky. Only downside is I live about 5 miles from Box Hill, which is the most scenic location, and also where most of the action should happen. Instead of this short journey, I have to get into central London on all 3 days. So if you see anyone doing the pose below on TV, you know it's me and someone is trying to cross ...
The guidelines you get are quite extensive and tell you what and how to wear every item, I think I know which way round they go! This extends to how to carry the jacket, the trousers and even what socks to wear, still they did stop at socks!
Monday, 25 June 2012
Been a couple of weeks ...
Friday, 1 June 2012
Getting back to normality - slowly!
Well since I last wrote I have been extremely busy, doing all sorts of great things. In no particular order I have:
- been to Leisha's 10th birthday party
- family day out at Thorpe Park with some good friends
- been clay pigeon shooting - twice
- been to loads of BBQ's over the Jubilee weekend
- attended the Jubilee dinner dance in Nutfield
- hatched a new chick - just one, the others unfortunately died
- taken the kids to see night time cycle racing round the streets of London
- broke and fixed Freja's car
- Sopoken to a new prospective sponsor for my ride and been offered some interesting new technology to take with me
- caught up with some old friends, who I have not seen for over 20 years
- attended my first Olympics training camp
- had a coulpe of meetings at work re my return
It may seem as though I am having a ball, and I am enjoying all of these activities, BUT this list is stretched out over a couple of weeks and I can assure you that I need time to recover after each one and still have to take it very easy in between. However, I seem to be coping much better and notice other improvements in my general well being.
This coming week is also busy, tomorrow I am playing golf with my Dad's best friends. This should be good fun as I have not played for at least 3 years. The down side is the weather is not forecast to be brilliant, nothing new there then. The upside of not being able to walk round is that I will have a buggy, so if I do really badly, I might try a spot of buggy rallying! Tuesday I must get down tot he jungle, or allotment, as this wet weather following the hot dry spell, has encouraged lots of vigorous growth. Shame it is the weeds not my plants. Then Wednesday I am off to Wales on my big motorbike for a few days.
One last thing to share with you all was a quote I heard today at my Olympics training, from a British para-Olympic swimming champion and multiple world record holder, as it fits exactly with my own personal ethos. When asked how he coped when he lost the use of his right arm, he answered ..
"I focused on what I could do, not what I couldn't"
Wednesday, 23 May 2012
Recuperating, well sort of
Tuesday, 15 May 2012
Tonight's the night, and the result is in
Tonight's the night ...
Wednesday, 9 May 2012
Ola
We ate out at resturants nearly every night, but it was very appararent how quiet Mojacar was, this was definatley a knock on of the current economic climate, not only in Spain but across Europe. We went to some really good resturants, only one did not come up to scratch. If you are ever in Mojacar, try out the Bay Bistro. This is a new resturant, only been open 3 weeks but the chef is a runner up in the UK Michelin Chef of the Year competition, and the food and wine was great, and only a couple of Euros more than the standard fare on offer elsewhere. Praise from me is praise indeed where food is concerned!
One really good thing while we were away was that I finally finished all my tablets, so no more medication for me for a while, however I have been very tired the last couple of days or so, so I hope that is just a combination of coming of the steroids, which I am told will have an effect, and the travel home, as that was a long day for me, with no siesta! I wuld like to say a very big thank you to Ros and Roger for the use of their appartment, and also to Ross and Ali for being taxi to and from the airport, we are both very grateful to you all.
That's the last week dealt with, so what's coming up, well the main focus for me is next Tuesday, 15th May, when I go back to the oncologist, and find out what is next for me. Obviously i am hoping for the best, and all the results seem to suggest that, but I am also prepared for more treatment if need be. Aside from that, I reall need some dry weather, my allotment needs some serious time spent on it, but it is just too wet. We also have a chicken who has decided to go broody, this is good as it means we can get some fertile eggs for her to hatch and be a mummy to. We need some more hens as most of my girls are getting on and no longer lay, and we really like our fresh eggs. So I need to prepare the nursery as "munm" will need the peace and quiet. The picture below is of the type of hens we are expectinmg once they hatch and mature, bit like a ginger chicken afro!
Thursday, 26 April 2012
Getting back to normal
Wednesday, 25 April 2012
Recuperation continues
Friday, 20 April 2012
More results are in ...
Saturday, 14 April 2012
Update from Fins open day
Click here to find out more

Busy week!!!
Sunday, 8 April 2012
Dene's Easter message
Monday, 26 March 2012
So excited
The last week has been very starnge to say the least for me, and has highlighted I really need to get my brain in gear. Firstly, the tiredness continued untill Wednesday, which also happened to be the day my sense of taste came back, luckilliy this was whilst having a pub lunch of tanmdori chicken, Sarah knew without asking as she could tell by my smile. The tiredness did not fully go, but was better, although the afternoons were the worst. BUT its my brain I worry about, I am showing all the signs of getting old, I don't know what's more worrying, that or the wait to see the oncologist in May!! Let me explain. I have always tried to work and aim at little steps on this journmey, some short term, some mid term and some longer term. As the news has got better, I have naturally been focusing on the longer term ideas, and this is first instance where I have come unstuck. I decided I wanted a coupe of grape vines for my greenhouse at the allotment, which would not fruit for 2 years. So I was looking over the a couple of websites and found one which had a red and a white at the right price. I book marked it to purchase after I had discussed it with Sarah. We then discussed it and agreed it was a good thing to do, so back I went to the internet, but by now I had found a site for the British Vine Society. We had a long email exhange and I agreed to buy 2 vines from them, the cost was lower and the support was much better. The two vines duly arrived, except they sent 1 red and 3 whites. Never mind I thought. 2 days later Sarah comes home and says there is a large box by the front door for me. We get it in and open it, low and behold, it has 2 vines from the first company. Now I remeber looking and bookmarking it but at no time do I remeber actually getting my wallet out and paying for them!!! so now I have 2 in the greenhouse, the others I have planted out and will set up a trellis, so look out for Vino de Marsh, from the sunny side of Redhill, with a lovely bouquet of nearby water treatment plant!
Unfortunately that was only the beginning. I also have been looking at a site called Approved Food, this is a site that sells food items which are near to there best before date ie still good to use for a long time, but difficult for shops to sell. They have a wide range of unusual items, sometimes in catering packs, which for my large family is ideal. This time I know I placed the order, and was very happy with it. at least I was untill the next day when I received the order confirmation email, showing I had ordered 11 packets of Dr Otker's lemon jelly. Now this would not be too bad normally, as we all eat jelly, unfortunately this was a catering pack, so each pack made 100 jellys, what on earth am I going to do with 1100 portions of lemon jelly!!! So I quicklly phone them to explain and I am promised that the order would be amended and I would have a call confirming it had been done, along with a refund. However the call didn't come so I emailed, detailing who I spoke to and the issue etc. Tuesday there is a knock at the door, and there is the courier with 3 VERY large boxes for me. We take them in and open the first one, oh no, 11 packets of jelly. They did not alter it after all. We open the next box, and whats this, another box of jelly, that makes 12, or 1200 portions if you like. Also in this box is the pick list. We open the 3rd box, and there is another pick list. OMG, they have sent the order twice, once as originally ordered and one with the amendments. So we now have double of everything I ordered. ARGHHHH. I get the iPad out to email them, and notice I mail, which I read first. There in my mailbox is an email from them, to confirm they had indeed chnaged the order and refunded my money. So for the grand total of £30, including shipping, I am now surrounded by items with a retail value of £250, not a bad result after all. Funny enough I have not sent the email, and will wait for them to contact me, which they have not yet done.
More to follow later this week, if my brain reminds me, enjoy the sun everyone
Sunday, 18 March 2012
Mothers Day
Monday, 12 March 2012
Morning all
Tuesday, 6 March 2012
News flash - The results are in
Monday, 5 March 2012
One more down, one more to go
It has Bugs Bunny and Elma Fudd on it, and Elam is asking "Has Anyone seen my hare?" Most appropriate don't you think? Good to see I am still laughing and smiling
I had such a busy week last week its all a bit of a blur, but here's the highlights. I managed to get another business sponsor for my charity scooter trip, Finns the local motorbike shop. I also managed to find my scooter and also rode it home from Hampton, next to Hampton Court. Like me its an old un and a good un, just needs some TLC LOL. The pic below is of the new/old scoot along side my big bike, which is under the cover, there is quite a size difference!

